- Melody Driscoll, 11, cannot walk or talk due to genetic disorder Retts Syndrome
- Doctors at King’s College London have taken the child off morphine
- This is due to fears that the drug could cause potentially fatal liver damage
- Her parents, who are fighting the doctor’s decision, received a letter from social workers which says the child could be taken into foster care
Melody Driscoll, 11, suffers from Rett Syndrome and cannot walk or talk
Parents are facing a custody battle as they fight for they terminally ill 11-year-old daughter to have pain medication.
Melody Driscoll – who has undergone more then 40 operations – suffers from Retts Syndrome, a rare genetic disorder that affects brain development, resulting in severe mental and physical disability.
Doctors at King’s College Hospital in London have are weaning her off morphine over fears that it could result in potentially fatal liver damage.
The parents are suing the hospital in a bid to get the painkillers for their daughter.
After contacting social services to see if they could help them fight the hospital’s decision, the couple were given a letter, the couple read about social services’ plan to take their ill daughter into care.
Melody’s heartbroken mother, Karina Driscoll, said: ‘I saw the words ‘foster care’ and collapsed. I couldn’t read on. We love our children more than anything and we’d never harm a hair on their heads.
Doctors at King’s College Hospital in London have are weaning her off morphine over fears that it could result in potentially fatal liver damage (pictured: Melody with parents Karina and Nigel Driscoll)
‘I asked for a social worker because I thought they’d help us do the best for Melody. Now I realise how naive we were. Parents are powerless.
‘How do we begin to explain to the other children that Melody might be taken from them?
‘The time we have left is so precious and I want her to spend it at home, making memories with her family – and not in agony,’ reports the Sunday Mirror.
After contacting social services to see if they could help them fight the hospital’s decision, the couple were given a letter, the couple read about social services’ plan to take their ill daughter into care
According to the parents, medics have said Melody is naughty rather than in a huge amount of pain
The parents, who live in Epsom, Surrey, are distraught at seeing their little girl in so much pain.
Melody was not predicted to live beyond the age of five, but she is now approaching her 11 years old. She is unable to walk or talk.
Karina, who has four other children with husband Nigel, explains: ‘I know these drugs might make Melody die sooner but she’s already terminally ill so we are going to lose her – we know that
Melody’s mum captured the heartwarming moment Ed first paid a surprise visit to Melody at Epsom Hospital in Surrey
‘We want as much time with her as we can, but understand that should be about quality, not quantity. I’d rather have one more year with Melody where she was not in pain, than five years of watching her like this.
‘How can we be called unfit parents for fighting for that?’
According to the parents, medics have said Melody is naughty rather than in a huge amount of pain.
They have enlisted help from Charles Da Silva, the lawyer who worked on the Charlie Gard case, and expect the bill to reach £50,000, which they are trying to raise money for.
The parents, who live in Epsom, Surrey, are distraught at seeing their little girl in so much pain
Melody met her favourite singer Ed Sheeran, who came to hospital to see her.
A spokesperson for King’s College Hospital NHS Foundation Trust said: ‘All decisions taken by our expert clinical team are in our patients’ best interests. We are unable to comment further on this case.’
In a statement, Croydon Borough Council said: ‘It is always very difficult for all concerned to ensure the right decisions are made for children who have complex health and care needs when there are differing medical options. We always seek to work with parents and hear the views of the child and the family.’